About Us- (Asperger's & ADD)
|
|
|
|
|
|
|
|
|
|
About Us- (Asperger's & ADD)
|
|
|
|
|
|
Our Journey through life!
Hi,
I've made this page really, to convince myself that i'm getting somewhere in trying to raise awareness of these "Invisible Disabilities!"
I'm Rach from Grimsby N.E Lincolnshire England.
I'm a mum age 36 (but feel 56 somedays!!) of Daniel age 10, he has a condition called Asperger's Syndrome (high functioning Autism) He was age 5 when diagnosed.
The film the Rainman relates quite well to Dan although he is definately not as severe as the part which Dustin Hoffman plays but has the same kind of traits. He has set routines and takes a brilliant part in this film and was researched very well indeed! I like most others thought that this film was exagerated BUT I now know that there are thousands of real Dustin Hoffman's in this world.
Another thought - Coronation Street's Roy Cropper is a fine example of an adult person with Asperger's Syndrome, there are now, thinking back alot of people I've known in the past and never really understood them or why they acted as they did etc, that I now realise have conditions like this - I feel very guilty now about just how ignorant we can be, that is the main reasons for these pages, I'd like to educate and make people aware of these conditions in hope that we will be KINDER to others that are a "little bit different" and to have a better understanding of these many different conditions. We all know it's a cruel world and my favouite motto is "If you treat others as you'd like to be tret yourself then the world would be a better place" as we are ALL different in so many ways this should be a thought in your mind!
I spend alot of time researching and chatting to others on topics of Asperger's Syndrome.
On researching Asperger's, 5years ago, I realised I have ADD (Attention Defecit Disorder)which had never been picked up on, untill I was 30! I have suffered depression since the age of 8.
I now know why I am like I am! I always wondered why I thought and acted as I do, as a child I always seemed depressed and a daydreamer everything I read about ADD was and still is me - the only problem is that i'm having a difficult problem with sorting myself out with regards to specialists.
Here in this part of the U.K especially, our psychiatrists believe that children grow out of ADD/ADHD when this is not the case at all. I along with many other adults in the U.K are living proof! (Just created a new site on my ADD probs..link at the bottom)
I have just paid to see a private Psychiatrist in Notts and now have an "OFFICIAL" diagnosis of moderate/severe ADD so I am now waiting to see my local NHS psych to see if he is going to take the advice of this specialist and give me the medication i need.(This never happened!) From what I know of, this medication will help me with my problems of inattention, I cannot concentrate for long and get bored and tire very easily. As well as feeling really lazy and not seeing the damn point in doing anything!(Lethargic) So the chance to try meds would be nice and hopefully beneficial to me.......
Mon 22nd Sept 03
-------------------
I'm now on medication (Ritalin) but it's on a prive perscription so I had to pay £55.00 for a months supply!!!
I am making good progress on Ritalin and everyone else has noticed a change for the better in me!
10 May 2004
-------------
I cannot have the medication from the NHS Psych so I will have to carry on paying for it! Unfortunately i am rebelling against paying for my meds and due to this and money matters I am not taking Ritalin so I've gone off again to my old self! Yes life feels shit! (Sorry to swear)
Friday 1st April 2005
----------------------
Been back on Ritalin a week now, i'm still paying private, but realized that it's worth taking this medication and need to sort myself out! Just had 1st screening appointment on the NHS for Cognitive Behavioual Therapy, she wants to take me on but there's a long waiting list! Looking forward to the future at last and trying to be positive!
|
|
|
|
Dan (my superstar!)
Dan was diagnosed at the age of 5, with Asperger Syndrome.
He attends mainstream school and has a statement of SEN, which gives him 27hours with a classroom support assistant (1:1)every week. (Band 2)
This is reviewed annually and has kept his hours of support.
He does not have any learning disabilities but needs the 1:1 support in area's of prompting, learning to socialize, set him small targets, explain things to him etc....
He dislikes school and it causes him many problems so his attendance is not too good, so I put his feelings/emotions first and do not push him overly as I now realize this does either of us any good! I have often doubted that Mainstream school is the best option, but we do not have any choice in this area, the only other option would be home education, i just wish he could attent part-time school i'm sure it would be best for Daniel.
Tue 5th April 05 (Year 5 @school)
------------------------------------
Dan is going through a really hard time just now, he is realizing that he is different from the other kids at his mainstream school, his self esteem is really low and his anxiety levels are at their worst!
I am doing my very best in making him feel better about himself, and explaining that his condition can be seen as positive not always as negative, and that he does not have to feel so down on himself because he does not enjoy others interests of Footballetc, I explain that everyone is different and feel he could really do with being helped with social skills, councelling and maybe medication.?
Thur 24th April
----------------
Dan has been given ante-depressants that will also help cut down his anxiety problems, I have done thorogh research and am going with my heart and head on this one and gave him his first tablet tonight before bed. I understand this medication will not have any immediate effect (if any?) but am hoping this suits him and hopefully help him in his struggle with every day life, This is not a cure for his A.S but just want to help him feel better. We are talking a lot and this is helping him, school is one of the biggest problem area's and i'm just waiting to see how everything goes before I make any rash decisions about removing him from this kind of setting.
______________________________________________
Aug 05
------
Took Dan off the Amitryptaline (ante deps) ages ago as he showed signs of Tourettes (Tics) and was more unsettled on this medication. He's well & happy just now, but think that's down to having no pressure put on him as it's school holiday's!!! He's eating me out of house and home but no bother at all as long as I don't make him come with me anywhere...so we're both housebound!
|
|
|
|
This is a quick effort but will carry on updating!
I would love to recieve your e-mails - so don't be shy, it will also encourage me to continue with these pages - keep a look out!! My e-mail addy is: Rachelp2@aol.com so go on drop me a quick message!
|
|
|
|
|
|
|
page created with 1-2-3 Publish
|
|
